Toby has a temperature and he has been moved back to Charing Cross Hospital

29th November 2016

Yet again Toby has been moved back to Charing Cross Hospital because he has leaking fluid from his head and it is infected,

I feel so heartbroken for him because he is in a cycle of 1 step forward and then 1 back again. We are all getting hopeful and then those feelings are dashed again. I fear that his body is weakened by the operations and the drugs he is on. I will be going to London to stay with Kam and I will be much closer to the hospital (by about 130 miles). I worry about leaving my wife Gwyneth back in Wells on her own because she is dealing with a lot of stuff as well as trying to make a living. I always help her with her websites, video and anything which is needed. This is why I have created the fund raiser because we really need the loving support from others as well as a fund to help Toby recover and have a better future. You can access the fundraiser from here  Please help - however small your contribution it will be so appreciated.

One of the very sad things is before the first operation I can remember his very positive outlook and how he would be fine. Now his faith is gone and his mood low. Unable to do the things we all take for granted is very frustrating for him. He has fallen several times whilst trying to visit the toilet on his own and ended up with bruising himself.